Saratoga cycle

I want to thank my brother Paul and his wife Nancy for purchasing the Saratoga cycle for me.



I found it by using All of Craigslist and discovered it was in Phoenix at a resale shop not far from their home. Against my wishes they went to check it out and of course they bought it and shipped it to me.  The good thing is that it was a fraction of what it would cost new and it is in really good condition.

I am using it regularly and it really helps keep me conditioned.

Thank you Paul and Nancy!

Here it is:

FES

I have some exciting news. 

Up until now Functional Electrical Stimulation (FES ) did not work on my body from my midsection down.

At NextSteps they have been using the Restorative Therapies RT-300 bike .  Electrodes are attached to my quads, abs and erector muscles in my back.

The electrical current activates the nerves and consequently contracts the muscles.

The great thing about this is that not only does it help my muscles but I also feel it as well, which provides my spinal cord with feedback.

It is all about feedback to the spinal column.  Due to the injury the pathways of communication were disrupted.  Working with this types of therapy helps retrain my spinal cord. 

The contractions are small but they seem to have gotten stronger over time. 

I own a Motomed that my dear friends Tom and Linda Salonek purchased for me. 

It is instrumental in helping me keep my leg muschles healthy.

I am going to look to add Motomed FES module so I can do this at home too.


KAFOs

Here is one of my Knee Ankle Foot Orthotics (KAFO) that I am looking foward to wearing soon.



They have been modified extensively from the original design and now allow me to unlock them from a standing position.  If you look closely you can see a white strap on the back of the thigh area that will allow me to do this.  The heal area, which has caused me problems, has been expanded to allow for more protection. 

Lakeview Polar Bear Plunge

I want to thank everyone for everything they did for my family on Saturday.  The weather was beautiful, and I am confident the water was cold!  It was amazing how the Lakeview Polar Bear Club helped us get right down to the shore.  When I am able I will also participate in the Plunge, and I look forward to that day.

I want to share a few of the photos I have from the 2013 Lakeview Polar Bear Club Plunge.

Below is a picture of Mary Cate and her mother Kerry.  Along with her husband Chris, they were the other family sponsored:


Please visit Mary Cate's website and remember her and her wonderful family in your prayers.


Here is a picture of my sister Jane and my children right after she emerged from the lake.




This shot is of Stu Vieth, the great guy who asked the Lakeview Polar Bear Club to sponsor us. 



This last picture shows just a few of the many plungers.  This was such an amazing event and thank you all, especially Brian Marchal!





The hardware in my body.

People have asked me what was put into my body after my injury.  Well I have quite a bit of titanium all over the place.

This first picture is of my right tibua.  It was smashed when I jumped up on the hood of the minivan that hit me.  The titanium rod was put in to support the bone by Dr. Matthew Jimenez.  He is a great guy who genuinely cared about me and my family. He not only runs marathons but ultramarathons too!  

 
 
This photo is of my spine from a side view.  This surgery lasted over 4 hours.  The metal put in my spine is designed to make sure it doesn't move over time and to release pressure.  Dr. Thomas Gleason performed the operation.  I will never forget how nice he was to my wife and family.  I wish more doctors were like him.
 
 
 
If you look off to the top right of this picture, you can see many white lines. These white lines are titanium clips put on my lymphatic system to stop leakage.
 
The tremendous impact of the minivan on my body not only caused the damage you just read about, but it also collapsed my right lung, broke all my ribs on my right side, lacerated my liver, ruptured my spkeen, and caused my lymphatic system to tear. This rip caused the lymphatic system to leak. Suffice it to say the leakage was serious enough to operate on. I had operations and diet changes to correct it but none worked. Finally, we decided to simply go in and clip any potential leakage points off. The surgery, which lasted over 5 hours, was done by Dr. Axel Joob who was the most colorful individual I remember from my hospital days at Advocate Lutheran General.  He has a great sense of humor and was nice to be around.
 

One last Dr. from this hospital I want to mention is Dr. Marin Marinov. He stabilized me in the Emergency Room and helped to save my life.

 
 
 


Walking suspended harness


This is Next Steps new walking suspended harness.  This apparatus helps people walk while limiting the amount of weight they bear.

Here I am using my inner thighs to work sideways along the mat.

Since the wound on my heel is not completely healed I cannot fully walk on it. I stand daily but my doctor is worried that I might damage it through the walking motion.

Hopefully, I will be up and at it in my orthotics very soon.


Merry Christmas!

I want to wish you a Merry Christmas and a Happy New Year!  Thank you all for your prayers and financial support.  We are very grateful to all of you.
Peace,
Peter

Lakeview Polar Bear Club

I want to thank the Lakeview Polar Bear Club for supporting my family. 

I am so grateful to Brain Marchal and his wonderful organization as well as Stuart Vieth who suggested us.

When I am better I will make the plunge as well.

In the meantime I look forward to meeting you at the plunge in 2013.

Victory!
Peter

http://lakeviewpolarbearclub.com/Families-2013.html

I would like to thank you for visiting my blog.  If you are a new visitor you probably are viewing this because you read an article my best friend, Tom Salonek, wrote.  I am so grateful for all he has done for not only me but my entire family as well.

Since I last updated the blog, I am happy to note that I continue to regain function in my body below the injury, which is incredible.  Unfortunately, I have had a wound that is slow to heal on the back of my right heal.  It has impaired me from gait training in my KAFOs, Lokomat and Therastride for the last 5 months!  The good news is it is finally closing.  I am utilizing hyperbaric oxygen treatments 5 days a week, and a product by OASIS Matrix that is an advanced grafting material made by hog intestines.  These two treatments are actively working on my healing process and have accelerated it exponentially.  

Thank you so much for visiting and God Bless you! -Peter

New walking improvements

Pete discovered that if he makes a kiya, a noise you make in karate when punching, kicking or blocking, his muscles tightened and he is able to move his right leg forward.   Fantastic!  Another great Alexian Brother therapist, Tracy Tziortzis is seen helping Pete in the attached video.



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Working with Vicki at Alexian Brothers

Pete is working with the skilled staff at Alexian Brothers on a weekly basis with therapy focused on standing and walking.   In the following 2 videos, Pete is working with Vicki Surges one of his primary therapists. In this first video, Pete is moving from sitting to standing with a walker.


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In this video, Pete is walking which continues to improve consistently each week.  Pete's left hip is stronger than his right hip, which continues to improve and gain strength.  He is now able to walk up to 30 feet before resting and his legs are supporting more of his body weight rather than just his arms.  While his arms still provide significant assistance, this is gradually changing with the legs strengthening and baring more and more of the weight.  Vicki assists with maintaining the supporting foot.  Occasionally she will help move the active foot forward.  This too has decreased with the increased strength that is returning.




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Both Alexian Brothers and NextSteps have exceptional therapists that have been critical to Pete's continued progress.

Therapy at NextSteps

NextSteps Chicago, a Spinal Cord Injury Center, is one of the two primary centers Pete is currently using for therapy.  NextSteps practices the latest protocols in activity based motion therapies that help spinal cord injury clients regain function.  In the attached video, Pete is working with Greg, one of the NextSteps therapists, on standing and then dipping down.  This dipping exercise engages Pete's legs and gluts and increases his upper body strength.  This specific therapy is performed several times a week.   Pete does not use any leg braces and is able to feel his muscles really assisting as he is moving.  Fantastic progress!

For more information on NextSteps check out their website at http://www.nextstepschicago.org/


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Pete Taking Steps with a Walker


Pete continues to make great progress.  I've attached a new video of Pete walking with the use of a walker.  Pete's is seen working with two of his therapists, Tracy and Vickie at Alexian Brothers.  His therapists have done a great deal to help Pete walk with the appropriate form and ensure his muscles are developing to most effectively walk with the walker.

Working with a walker is hard on Pete's upper body and is very exhausting.  As he continues to work with the walker, his legs will continue to get stronger and it will become easier on his upper body.

Amazing progress.  Please continue to keep Peter and his family in your prayers. 



Pete has been working very hard at his therapy and it is paying off with some significant improvements.  In the last few weeks his right hip is getting much stronger as you can see in the attached video of Pete walking with KAFO using parallel bars.

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In the next video, you can see how strong Pete's lower right leg is getting.  His leg is held by a sling and he is able to move the lower leg forward and back.  Fantastic progress!

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In this final video, Pete is crawling which provides great input to the spinal cord.  This is extremely difficult but the benefits are well worth all the hard work.
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Feb 12, 2012 Update on Peter's Progress


It has been 9 months since Peter was injured.  For many of us, it is hard to remember what we were doing 9 months ago and what we have accomplished since April 16th, 2011.   For Peter, each day, each week, and each month since his injury in April, have brought continued progress and improvements through his unwavering focus, hard physical and mental work, and dedication to his therapy and other critical supporting treatments.

Today Peter is able to drive himself to his therapy by using hand controls attached to his car. He is able to maneuver through his home, moving from the lower level to the upper level with the aid of a wheel chair lift.  Most importantly, he is now able to stand and walk with the help of leg braces and support from parallel bars. 

What Peter’s journey will be and how long it will take is truly unknown, but with his dedicated focus on reconnecting his brain to his body, we all know he will continue to improve each day and retrain his body to return his mobility.

Because so much has happened, I will give you some background on his injury, some of the truly amazing accomplishments and key actions Peter has taken so far.

Peter has a T10-11 incomplete spinal cord injury.  This means his spinal cord was not completely severed and the cord that is intact can continue to carry critical neural connections from his brain to the rest of his body.  His injury interrupted this critical neural highway, but through aggressive therapy the brain to spinal cord to limb connections continue to rebuild.

Peter completes daily physical therapy sessions at two centers that focus on spinal cord injury.  He uses the Lokomat® System and TheraStride system for gait training which reinforces the brains connections by simulating walking.

In addition, Peter uses parallel bars and A Knee, Ankle, Foot Orthotic (which is a leg long orthosis that spans the knee, the ankle, and the foot) to stabilize the joints and assist the muscles. This allows him to walk with the help of parallel bar supports.  With the help of a standing machine, Peter is able to stand for up to one hour to maintain muscle and bone strength in his legs.

Peter is also using Functional Electrical Stimulation (FES), which is applied to his back and legs to help restore and improve their function.  This tool applies small electrical pulses to paralyzed muscles to restore or improve their function.

Another critical therapy has been his use of hyperbaric oxygen therapy.  HBO therapy (HBOT) forces oxygen into oxygen-deprived central nervous tissue.   Peter has taken over 100 HBOT sessions, which have contributed to the rapid reduction of swelling in his spinal cord and improved healing of his tissue.  This therapy has been essential to his continued improvements. 

The most critical element to Peter ‘s progress has been his faith and resolute focus on his therapy.  While it has been 9 months since Peter’s accident, which may not seem long to some, for Peter, every day is a challenge mentally and physically. Please remember Peter and his family in your prayers.  His wife Rita tirelessly supports Peter in his daily needs along with caring for their 3 children, Katherine, Henry and Andrew.  With Peter’s deep faith and your prayers he will continue to heal and make new progress every day.